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Monday, March 7, 2011

TEAM CHARLIE CLAIRE SHIRTS!

We have been rocking and rolling over here with Team CC tshirts! We had a lot of people stop by and pick their shirts up over the weekend and if we have received your $$ then yours is most likely in the mail...there are still a couple we need to get out.  If you ordered a shirt and need payment info please email me (kcnorth13@gmail.com) and if you still need to pick up your shirt shoot me an email also.

We are asking everyone to do us a BIG FAVOR (just in case the thoughts and prayers aren't enough!!) We (and when I say we I mean Nicole and Caitlin) are going to be making a scrapbook for Charlie Claire about this entire experience since she will really have no idea what actually went on.  We would LOVE it if you could take a picture of yourself wearing your Team Charlie Claire shirt and send it to us (email, regular mail, facebook, etc.) so that we can show her how much LOVE and SUPPORT she was getting during this time! Here is the first picture for the scrapbook...


Seizure report: Things are pretty steady on this front...this morning C has already had 7 - it seems as though she has a lot in the morning and then not so much during the day and then it kicks in again at night. Again, this is still down from the 30-ish she was having before the Sabril. You would think that after witnessing hundreds of seizures that we would get used to it but I think it actually gets more difficult each time.  I just wish we knew what she was feeling/experiencing/etc.  unfortuantely (or maybe fortunately) she will never be able to tell us. 

One other thing I would like to do this morning is tell you about a little girl named Netta...she is currently at NYU having the same surgery that C will be having in 3 weeks.  Her surgery is going to be done in 3 parts (C's should only be 2 parts) - Netta just had the grid placed on March 3 and her next surgery is scheduled for March 10.  Just asking if you could send some thoughts and prayers their way during this overwhelming time...http://annettasmithsaggese.webs.com/apps/blog/show/6317887-marathon

2 comments:

  1. Those t-shirts are awesome. (Hope you don't mind me commenting so much - I'm really not a stalker)haha. You all are an inspiration to me - and I'm praying for you guys. Tracy gave me a button and you can bet I'll be wearing it on surgery day. love and hugs~

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