TEAM CHARLIE CLAIRE: August 2013

Wednesday, August 28, 2013

summer winding down and graduation!

We are trying to soak up every last little bit of summer...it has gone by way to fast!

And in some bittersweet news...we are officially in the wind down process with the Infant/Toddler program. We have been in the process changing things over so Charlie Claire will start seeing April and Allison privately. Charlie Claire "graduated" this past week even though she is still in the program until she turns 3.

We are super glad that Charlie Claire will be able to continue with April and Allison but we are sad to be leaving this amazing program. The people we have worked with have been nothing short of amazing and we are so beyond blessed to have had such a wonderful experience. Thank you to Charlie Claire's Dream Team for all of your hard work and dedication, we love you all so much!

Monday, August 12, 2013

August & Medicine

Is it really August?? Where has the time gone?!

We are still in full summer swing...beach, pool, and swimming are the three main words we hear around here on a regular basis. We are going to have two disappointed littles come fall! :)

We are also in potty training mode! Jackson has been potty trained for a few months now but C recently started showing more interest so we are full steam ahead with getting her out of diapers! She is doing really, really well!

We do have some other news to share. Charlie Claire is officially off all seizure medications. She has been off for a little over a month now. I haven't really been ready to shout it from the roof top even though this is where we ultimately wanted her to be I just always thought she would be seizure free and off medicine. Thankfully C's neuro is very big on risk/benefit and making sure that the cure for her epilepsy is not worse then her epilepsy itself. That is why he wanted to see how she did off medication. At her last med check Charlie's level wasn't even close to therapeutic so after a few chats Dr. M suggested seeing how C does off medication completely. With her seizure activity being so minimal and increasing her dose to a therapeutic level would come with side effects it just seemed like good timing. Things have been totally normal since she has been off medicine, there has been no change in her seizure activity whatsoever. We know this probably isn't a permanent situation but we are grateful for the time being that Charlie Claire is medically stable enough to not be on any meds! :)