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Monday, September 14, 2015

"The best thing about memories is making them..."

 I often struggle with keeping up with C's blog.  It's not that I don't have things I want to share it's just that there is not as much to "report" on.  I am so grateful that Charlie Claire is so stable because I realize that is not guaranteed.  Things also tend to seem so "normal" that I forget to appreciate all the little things she does every day that we once weren't sure if she would do.  When Charlie was first diagnosed and I hopped on the internet to learn more about infantile spasms my search results were devastating.  I searched high and low for a success story and at the time I did not come up with one.  Once we were past C's surgery I told myself that I wanted this blog to be that ray of hope for another mama who found herself in the same situation as me. It is for that reason that I keep posting things and while I don't have much medical stuff to report on I do hope that if someone comes across this blog that they will have hope that everything is going to be ok...
 
 
Beach days....

Family vacation...Charlie Claire loved eating breakfast on the porch! 

 
Enjoying the boardwalk rides! 


 
Vacation! 


 
Pool time with Uncle Jason


 
More rides! 




Love this beach girl! 


 Big hugs



 
Making pizzas with Daddy!



Fireman Jackson to the rescue...


VERY into legos

 
Beach buddies! 


 
So glad Uncle Jason, Aunt Jen and Sienna were in town for a few days! 


 
Vision therapy...Cakes works so hard and is so good about doing her homework! She has definitely made so much progress and we are so glad that this form of therapy is available! 


 
Turning the tables on her therapist! 



Working on writing our names...
 

 
Dinner with these two littles the night before school started! 
 


 
And just like that...the first day of their last year of preschool! 
 
And lastly...J and C have some news to share!
 
 
Hope everyone enjoyed their summer and are settling into the new school year! :)


Thursday, July 9, 2015

"some of the best memories are made in flip flops..."

Happy July everyone!
 
 
We hope everyone is enjoying their summer as much as we are enjoying ours! This time of the year makes us happy! We get to do most of our favorite things and I don't know about anyone else but I love when my littles are not in school, I thoroughly enjoy our more leisurely pace!!
 
It's been quite a while since our last post...
 
We've enjoyed the beach with family!
 


And this kiddo is becoming quite the swimmer!



Their new favorite thing is "reading" stories to each other

 
Enjoying time with daddy!


Goobers!!!
 

 
Can barely get this little fishy out of the water!



 
Routine check up with Dr. M (neuro)...nothing new to report! No news is good news these days! :) 


 
Sass face "driving" us home! 


 

He has a really tough life! 
 

 
Sister trying really hard to catch Jax! 


 
At first I was nervous when the house was so quiet...then I found this! 


 
Assessment at vision therapy...C is making awesome progress and we are seeing amazing improvements in so many different areas! 



 
Bedtime snuggles with daddy! 
 



Saturday, May 23, 2015

May and such...

Seriously,  how has it been over a month since our last post?!  There really isn't much to report on which is a really good thing to be honest! :) 
 
I'll just let the pictures do the talking...
When Jackson joins C at OT...


There is constantly an "emergency" in our house!

Beach! Beach! Beach!





Happy Birthday Nonno


Welcoming their new cousin





First pool day!

Visit up to Aunt Jen and Uncle Jason's for Sienna's birthday!


 Happy Memorial Day Weekend!