I often struggle with keeping up with C's blog. It's not that I don't have things I want to share it's just that there is not as much to "report" on. I am so grateful that Charlie Claire is so stable because I realize that is not guaranteed. Things also tend to seem so "normal" that I forget to appreciate all the little things she does every day that we once weren't sure if she would do. When Charlie was first diagnosed and I hopped on the internet to learn more about infantile spasms my search results were devastating. I searched high and low for a success story and at the time I did not come up with one. Once we were past C's surgery I told myself that I wanted this blog to be that ray of hope for another mama who found herself in the same situation as me. It is for that reason that I keep posting things and while I don't have much medical stuff to report on I do hope that if someone comes across this blog that they will have hope that everything is going to be ok...
Beach days....
Family vacation...Charlie Claire loved eating breakfast on the porch!
Enjoying the boardwalk rides!
Vacation!
Pool time with Uncle Jason
More rides!
Love this beach girl!
Big hugs
Making pizzas with Daddy!
Fireman Jackson to the rescue...
VERY into legos
Beach buddies!
So glad Uncle Jason, Aunt Jen and Sienna were in town for a few days!
Vision therapy...Cakes works so hard and is so good about doing her homework! She has definitely made so much progress and we are so glad that this form of therapy is available!
Turning the tables on her therapist!
Working on writing our names...
Dinner with these two littles the night before school started!
And just like that...the first day of their last year of preschool!
And lastly...J and C have some news to share!
Hope everyone enjoyed their summer and are settling into the new school year! :)
So fun to watch her thrive! Thanks for the update. I think this will be encouraging for another mom or dad and I love that you recognize that.
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