One Day Closer...

It seems as though Charlie Claire is back to having episodes every 15-20 minutes.  There is the occassional lull but for the most part we are back in the area of 20-30 clusters a day.  In a way this is "positive" reinforcement that surgery is a MUST!  It has been extremely difficult for us to witness the increase in seizure activity after the Sabril seemed to calm things down.  For some reason the partial seizures C is having are heart breaking for us to watch.  In comparision to the spasms the partial seizures aren't harmful to Charlie Claire but when her whole body is trembling and her eyes are blinking a mile a minute that thought isn't really comforting.  We just keep reminding ourselves that March 30 is closer than we think...

Read this quote on my friend Stephanie's page and felt it certainly applied these days...thanks S...

Courage does not always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow"

(Mary Anne Radmacher)