Morning After

Thank you to Mimi for staying at the hospital with C...mommy and daddy got some much needed rest!!

Over night C was such a wiggle worm and kept trying to pull the tube out of her mouth that the nurse had to restrain her arms! Her heart rate has been a little high but they said that is normal for right now. She has been breathing on her own and the staff is basically trying to keep her comfortable enough to not be in pain but to keep breathing on her own but not so comfortable that she doesn't breath on her own...

She has some bleeding from her head but Dr. Tye said it's just from the drain and everything currentky looks par for the course. The neuro team should be down shortly so we can get info on when she will start getting monitored on the EEG. Saying lots of prayers that Charlie Claire is not having seizures and she won't have to have any more brain removed.

She just got back from her ct scan and hopefully if all looks well the breathing tube will come out. They will also look for placement of the grid to make sure it's where it needs to be and then the EEG should be able to start.

As far as seizure activity...it's hard to say without the EEG because her eyes have been closed so we can't see blinking or deviation. As far as the spasms, we haven't seen any!!

Just so we aren't leaving Jackson out! He is doing great! He loves all the attention he is getting from our family and friends! He loves people watching in the hotel and he went swimming in the hotel pool with Nonno!