As we have mentioned before in previous posts, We LOVE C's physical therapist Miss Wendy! Charlie really isn't on a schedule so sometimes it is hard to plan PT because we don't always know when CC will be awake or sleeping. This morning CC decided to only take a very short nap so when Miss Wendy arrived our little girl was pretty tired. Wendy was able to get a little bit of PT in before Charlie Claire decided to pass out!
Wendy seemed super pleased with C's progress in the last two weeks. She said that not only is C holding her own but she is PROGRESSING!!! Charlie Claire is focusing on our faces when we talk to her, she is tracking a couple objects, etc. One of my concerns was C's ability to hold her head up - since starting the Sabril C has been (compared to Jackson) like a limp noodle. Wendy doesn't think she is as noodle-ish as I think she is and if I didn't have Jackson to compare her to then I probably wouldn't think about this as much as I do. C did a really great job today when Wendy had her sitting up and she did well with working on her balance while sitting. We are going to be working on that the next couple weeks along with a couple other things and then we will meet with Wendy when we get back in town to re-evaluate our goals. Charlie Claire will apparently get some PT in the hospital as well.
Another lovely thing that has been happening lately is C's personality is coming back. During the 5-ish weeks of pure steroid torture Charlie Claire cried/complained 24/7 so there were no smiles, no "talking," no laughing, etc. It was extremely difficult for us to literally watch Charlie Claire's personality disappear and it is such a blessing that it is coming back!!! She is back to interacting with us (She is a BIG daddy's girl these days!) and our families - we get smiles and laughs as well as some full on "conversations"! This really does our hearts some good!
We are so unbelievably overwhelmed with how well Charlie Claire is doing considering she is having so many seizures and on so much medication. We are super hopeful that once the seizures are under control C is just going to amaze us...even more than she does now! :)
TEAM CHARLIE CLAIRE PICS!
We have started getting some photos of people rocking their TEAM CC shirts! Keep them coming...we can't wait to sit down with CC one day and show her all these pictures! We are forever grateful for all the love and support for Charlie Claire!
 |
Charlie Claire's cousin Jamison  |
No comments:
Post a Comment