Weekend

The past couple of days have been much quieter at the hospital since it is the weekend.  Kind of a nice break...instead of 15 people coming in every 10-15 minutes poking and prodding Charlie Claire and shining a flash light in her eyes there are only about 5 people doing this.

Yesterday morning Miss CC gave her nurse a run for her money.  While feeding her, C EXPLODED in her diaper which required a big clean up including changing the linens on her bed. This proves to be a tad difficult because C has wires coming out of her head that are hooked up to a machine on top of IV lines, leads on her chest, etc. After they got Charlie Claire all clean and settled I continued feeding her.  Immediately following this feeding, C got SICK EVERY WHERE. Which required ANOTHER major clean up and linen change.  However, the past few days C's heart rate and blood pressure have been elevated - the dr's were in the midst of changing C's bp meds to try and bring it down, etc. but ever since she got sick all of her stats have returned to normal.  The nurse thought that maybe once Charlie Claire got that out of her system she is just feeling better and things internally have calmed down.  Aside from getting new IV's, blood draws, etc.  things have been pretty uneventful which is apparently a good thing!

As far as C's EEG...
The spikes seem to have consolidated to an area right on the edge of what they removed the other day.  Dr. M said he expected this because had they not placed the grid they would have removed that area the other day they just decided to be conservative since they were placing the grid.  If they recommend removing this area it would involve removing a portion of her sensory strip but not the whole thing and it appears right now that the motor strip will be spared.    C has still remained SEIZURE FREE and the background of her EEG continues to look normal!!!! Our surgeon, Dr. Tye, was out all weekend and returns tomorrow so we think that after Dr. M and him talk tomorrow they will give us their recommendation.

It has been such a BLESSING to not see any seizures...considering that we are used to seeing somewhere between 15-40 seizures a day it is AMAZING to not see a SINGLE one!

The swelling in C's face has gone down considerably and she is now able to open her left eye! Her scalp around her incision is pretty bruised and she is quite irritated with her little gauze "hat" so she keeps getting it off.  We have also been starting to get some smiles out of her!

Charlie Claire yesterday afternoon!

We had some visitors yesterday which was super duper nice! They were able to come and hang out with Jackson and then head up to the hospital to see C.  Jackson has also been getting in some serious Uncle Jason time! I will put up a picture of them in a little bit!  There are some more people coming into town today and the sun is shining...two things that make us very happy!

Please pray that things continue to look good on C's EEG and that we get more information tomorrow regarding the surgery on Wednesday.  We truly appreciate everyone who is on TEAM CHARLIE CLAIRE!!