Pleasantly Surprised

Dr. Morton was a bit surprised this morning when we talked to him! He said the spikes around the surgical edges have quieted down...meaning that as the swelling and irritation are going away so are the spikes!! Dr. M said that he wasn't expecting this to happen but he is pleasantly surprised.  Charlie Claire is still seizure free and Dr. M still wants to monitor what happens over the next 24 hours (meaning today/overnight) before making a final recommendation about the surgery Wednesday.  Today he said if things remain the same that he would recommend just grid removal and not removing any more brain tissue.  Dr. M said that while the spikes aren't "normal" that he could live and be comfortable with the activity he is seeing. 

He said today that he would rather Charlie Claire be on a low dose seizure med long term then to remove something that she would miss (her sensory strip).  When he was in today C was sleeping but when he lightly touched her face and hands she reacted which means that currently her sensory strip is functioning.  One of the most successful things right now is that the catastrophic hypsarrhythmia pattern on C's EEG is completely GONE.  That is what causes developmental delays...since that has been eliminated and the background on the remaining left side of her brain and the right side looks normal Dr. M is very encouraged about C's future!

We are certainly hoping that things on Charlie Claire's EEG remain uneventful and that in conjunction with the doctors we are able to make the best decision for CC...

As soon as we know more we will fill everyone in.  Please send some good positive thoughts and prayers C's way!