Update!

Let's start with Charlie Claire's physical therapy yesterday:
Wendy the physical therapist is awesome, we love her.  She always make me feel so much better about things.  Considering the last 3-ish weeks have been crappy since C's roid rage was in full effect she thought C was doing great.  She is doing awesome on her tummy time and is so close to rolling over.  When we "help" her she rolls over great on both sides and Wendy said she holds her head in perfect position which means she knows where she is in space.  She isn't super interested in holding her toys but she really likes her hands these days. Charlie is holding them together all the time and constantly putting them in her mouth which Wendy thought was all good stuff.  We recently got Charlie a toy that David, Evan's dad, told us about. Evan is a little boy on the west coast whose story is very similar to C's, he had a hemispherectomy (surgery where they removed the entire left half of Evan's brain) in November and is currently seizure free and doing awesome these days -- feel free to check out his website  http://www.evanstauff.com/  David has been super helpful to us the past couple months. Ok, back to the toy! Charlie doesn't seem to like holding her toys right now but she likes having her hands on this new toy because it vibrates!  Wendy said she thinks that Charlie probably likes the "deeper" stimulation that the vibration produces.  She started to get a little fussy during her session so Wendy took that toy and put it on her belly, legs, feet and it totally calmed her down!  All in all, Wendy thought that C is doing a really great job and hopefully now that the steroids are coming to an end we will have a more productive two weeks until we see Wendy again!

Seizure activity:
Nothing new to report here, it seems to us that the things haven't really improved anymore since the increased dose of Sabril.  We have an EEG scheduled for Tuesday morning at MCV before we meet with the neuro surgeon and neurologist. That will clearly tell us what exactly is going on and if C should stay on the Sabril or if it is time for her to start tapering off of that. We should know more after this appointment in regards to the date of Charlie's surgery.

4 month check ups:
We switched pediatricians so this was our first visit with the new dr and she was GREAT! She was super supportive of what we are going through with Charlie Claire and really took her time to meet with us and check out both babies.  Jackson, the scrawny little chicken I gave birth to, is now 17.4lbs and 25.5in!! Charlie Claire and her cheeks (I know her cheeks will come down but it sure does look like someone pumped her full of air!) are coming in at 15.5lbs and 24in.  They are both allowed to start rice cereal now and we double checked with C's neuro and he was totally fine with that too!