Another day in paradise!

There is never a dull moment in the North house!

BOTH babies are sick now.  We thought Jackson's cold was getting better...funny story - it's back and now Charlie Claire totally has it.  No one is running a fever -- just sneezing, coughing, etc.  The best part is now mama has a sore throat and I am pretty sure daddy is not far behind.  Ick...

As we have been continuing to wean C off the steroids her mood has been improving.  She is still far from her normal self but the 24/7 complaining has dropped to a more manageable level.  Her appetite is still through the roof and she continues to eat every 4 hours...even over night.  This = no sleep for mom and dad :( We will be so glad when these steroids are completely out of her system.  Today C went from 15mL a day to 7.5mL and then in 5 days she will go to 5mL a day before completely stopping on the 19th!

The Sabril appears to be having some success in controlling Charlie Claire's spasms.  The past couple of days she has had 5-6 episodes and today so far she has only had one.  They are a lot more subtle then they were before so I feel that we are watching her every move like a hawk to make sure we aren't missing something. The downside of the Sabril is that C is sleeping A LOT and is still a clumsy little thing.  Jason has taken to calling her Noodle these days! We called Dr. Morton today and we are going to leave C at her current dose of 6.4mL twice a day until at least Monday (we were supposed to increase it on Friday) to see if she can adjust to the sleepiness and to see if she keeps responding to this level of medication.  Just a quick update - she just had an episode as I am typing this so that makes 2 for the day.

If Charlie Claire does keep showing a good response to the meds there will be another EEG in our future to confirm if what we are seeing on the outside is the same as what is going on in her little head!

TSHIRTS: Just in case anyone is not aware, we are having tshirts made for the day of CC's surgery.  If you are interested in ordering one to wear that day to show your support please let me know (kcnorth13@gmail.com) -- we are going to be ordering the shirts by the end of the week!