Happy Valentine's Day!

It seems as though things have plateaued with the Sabril.  Since increasing the evening dose to 10mL on Friday we haven't noticed any difference in Charlie Claire's seizure activity.  We spoke to the neurologist this morning and we will be increasing her morning dose to 10mL as well.  I can't say we are thrilled that we are increasing the dose of Sabril yet again but I don't think either one of us had high hopes for this medication. I know it sounds strange to say we are looking forward to surgery but honestly that really seems to be the only thing that is going to help at this point.

At the same time we are increasing the Sabril we have been weaning the steroid! This is CC's last week on steroids! THANK GOODNESS! Mama can't take much more of the roid rage or the sleepless nights.

Since C's mood has been getting better little by little we have gotten in some more playtime and a few physical therapy sessions.  We also have been working on Charlie Claire's infant massage and she LOVES it! Can you blame her?! It also seems as though we are all finally starting to get over our colds so hopefully we will be coming off house arrest soon!

C's physical therapist is coming on Wednesday and we are interested in hearing what she has to say considering the past 3-4 weeks we haven't gotten much done. I will say though that when we do get our sessions in Charlie Claire does an AWESOME job but those sessions are few and far between.

Here is a little Valentine's Day love from Miss C!