2,629,038 minutes...

No matter how many minutes pass I will never forget... 

The second I woke up the morning of your surgery

The shuttle ride over to the hospital

The way the pre op room smelled as we were waiting to meet with Dr. T (surgeon). 

The way my heart felt when the anesthesiologist took you from my arms

The feeling of walking down the hall with Daddy to meet up with the rest of our family not knowing exactly what was happening to you

Staring at the pager hoping it would buzz just so we could get an update from the OR nurse

Hours later finally hearing that the surgery was complete and you were getting closed up

Rushing to meet with Dr. T and seeing you getting wheeled into the PICU

The relief my heart felt when I was back within arms reach of you

The overwhelming feeling of gratitude I feel every second of every day that goes by that you do not suffer through a cluster of spasms. 

Charlie Claire...we always knew we would be proud of you but I don't think we knew it was possible for us to be in awe of you.  

It would be an understatement to say how amazed we are by you and all of your hard work and progress. 

You are such a fighter. We love that you are fearless and have little to no reservations about trying new things. 

You do everything BIG...you love big, play big, smile big, work big! 

 Every therapy appointment, every doctors appointment, every blood draw...you handle every little thing thrown your way with such grace and with a smile on your face. 

This past year you have turned into such a little girl.  You love school and your friends! You are the best sister...you and Jackson have such a inseparable bond and you've turned into such an amazing big sister to Jones! 

Thank you for teaching us how life should be lived and thank you for not letting all of these obstacles stand in your way or change your approach to life! 

You have epilepsy but epilepsy does not have you. 

Cheers to another amazing year baby girl...thank you for letting  us be on this journey with you! 

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