Neuro Follow Up!

Before we get into the follow up visit from Monday how about we talk about the past couple of weeks! 

After Charlie Claire was released from the EMU two days later her and Jackson started their first day of the "older" 3 year old class at preschool! 

Super sweet Jackson and "cheese" face Charlie! 

Later that day Charlie Claire started her first night of dance class! 

Monster was super excited for his sister! 

Charlie Claire has been LOVING aqua therapy and has been making a lot of great progress! 

Every thing else has pretty much been status quo...

Morning snuggles

Story time with Aunt T 

Morning walk with Ripken

Relaxing waiting for C's blood draw

Making sure our treadmill has other uses in addition to mommy running! 

Now that brings us to Monday! 

Charlie Claire made us promise that she wouldn't have to get stickers on her head and while we explained that there would be no stickers involved, I am not sure she believed us....her face says it all! 

Once there we had quite a wait so it took everything in us to entertain two rambunctious (almost) 4 year olds! 

We are super happy to report that since starting the medication Charlie Claire has not had any of the new episodes! We weren't exactly sure what to expect since she has never really responded well to medication but the last event that we saw was the Saturday morning that we were in the EMU. Dr. M had the blood test results and C's level is really low.  The range is typically 10-35 with most people seeing benefits in the high teens - low twenties range. Currently Charlie's level is 10. Since she seems to be responding to such a low dose and we have not seen any side effects we all agreed that there is no reason to increase her level.  Dr. M was very pleased with C and how well she has done the past two weeks. We were instructed to call if we start seeing the episodes start up again which would mean there is a need to bump up the medication. If all stays "normal" we will see Dr. M before the holidays! 

We are beyond grateful that currently Charlie Claire has responded remarkably to the trileptal and thankful that we have been able to relax a little...it is exhausting to be so anxious.  We are still on seizure alert 24/7 which is just the way life is for us but it's a relief to have a little breathing room! 

Thank you for all the thoughts and prayers...they are working! :)