We have been given the green light by the neuro to cut Charlie Claire's keppra back some more...she no longer gets a middle of the day dose and her morning/evening dose went from 2.5mL to 1.5mL! We check back in a month and we also have C's follow up appointment with them at the end of September.
Jackson needed to go to the pediatrician today. He has odd looking little marks (for lack of a better word) on his back, chest and legs. They almost look like little ring worm marks but they aren't. The rash is no biggie...a virus and apparently it just goes away on it's own. Good to know since it looks like Charlie Claire is getting a couple of these little marks now. When Dr. Cotton came into the room the first words out of her mouth were "where have your babies gone?" (she had just seen Charlie Claire last week). Neither one of our babies look like babies anymore...they look like little kids! YIKES! This was made very apparent today when one of Jackson and Charlie's infant car seats was sitting out for me to drop off to a friend and Jackson climbed in it...
It's crazy to think that he at one time looked like this in this car seat...
Isn't he the most adorable little baby boy ever?!!! :)
After the trip to the pediatrician it was just starting to rain as we were getting home. Jackson bee lined for the house (probably because Grandma had a slurpee!) but Miss Charlie Cakes wanted to stay outside. I thought as soon as the rain really started coming down that she wouldn't want to be playing outside in it...boy was I wrong...she LOVED it!!
| finding the rain drops very funny! |
| Reevaluating the situation! |
| Taking cover! |
And a couple more sleep pictures just because!
Hi Charlie Claire and Jackson
ReplyDeleteMy name is Jenna, you are a brave, courageous fighter and an inspiration. Charlie Claire is beautiful Jackson is cute, adoreble and handsome.
I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.
I wrote this poem
Each of us are Special
Each of us different,
No one is the same
Each of are us are unique in our own way,
Those of us who have challenges, we smile through our day.
It doesen't matter what other's say
we are special anyway.
What is forty feet and sings? the school chior
http://www.miraclechamp.webs.com