January 19, 2011 was the day Charlie Claire was officially diagnosed with Infantile Spasms. Although we knew it in our hearts it was still a punch in the stomach to hear the Dr. at Hopkins say it to us with zero compassion.
Infantile Spasms are a rare and catastrophic form of epilepsy that severely inhibit development. We are super thankful that we ended up at VCU and that the Dr's there were able to stop Charlie Claire from having them. Granted, it came with a cost - her losing brain tissue - but had we not surgically intervened Charlie Claire would not be the growing and developing little girl that she is right now! :)
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