Charlie Claire went for blood work on Monday in order to get a level on her lamictal. Therapeutic is between 4-12 and Charlie's level was at 0.9. The Dr. said that he thinks the phenobarb is inhibiting the lamictal from building up quicker in C's system. We are increasing her dose from 5mg twice a day to 10mg twice a day and calling them in two weeks to let them know how Charlie is doing. At that time they will decrease her phenobarb, the Dr. wants to give the lamictal a chance to build up a little more before dropping the phenobarb again.
I know this probably sounds crazy but I was hoping her level would have been closer to therapeutic so we had a better idea of if C is going to need surgery. As I have said before, I am not patient and this waiting game is killing me. I am not "wishing" another surgery on Charlie Claire but I just wish we had a better idea of what the next few months look like for us.
I know we have mentioned Oliver on the blog before. Oliver is a sweet little boy who has Tuberous Sclerosis Complex and this causes him to have seizures and infantile spasms. Oliver underwent his first of two surgeries yesterday in hopes of putting an end to his seizures. Yesterday, I found myself extremely emotional and overwhelmed for Oliver's mom Stephanie. She and I have become very good friends over the past few months and thinking of what she was going through yesterday as she handed her son over to the surgeon brought back a lot of memories for me. The North's are proud to be on the O-Team and we ask that you please keep this sweet family in your thoughts and prayers. You can read more of Oliver's story here: Lanier Landing
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