Can we talk about how much we LOVE Dr. Tye (surgeon)?!! He was in the OR all day and as soon as he got out he went and checked on C's MRI and then came straight up to talk to me...well after he spoke to Dr. M (neuro)!
So here are the results - there is a TINY part of Charlie Claire's occipital lobe that didn't make it out. When they did the surgery they started more towards the front of her brain and worked their way back . By the time they got back there with all the trauma going on they couldn't see that little piece because it is deep. The CT scans after surgery did not show it either because of all the fluid and swelling. Now that the dust has settled this piece is visible and that is causing these little episodes. Dr. Tye and Dr. M do not want to rush back into surgery before giving Charlie Claire some more time to heal and to try a couple more meds. Right now the episodes (which still are not taking on a full seizure pattern) are so short and not interrupting C's daily life. So before taking (Dr. Tye's words) "a beautiful little girl who is growing and thriving" and putting her back in the OR they would like to give it some time. We will talk to Dr. M in the am regarding the game plan for meds. We are under the impression that if things do not start to improve in about 3 months that is when the decision will be made for surgery. If they do need to remove this tiny area it will not affect her motor or sensory strip, this piece is way in the back of her head - not even close to those two strips.
We are beyond grateful that C is at MCV under Dr. Morton and Dr. Tye's care. They are both so amazing and it is comforting to know that they are as on top of Charlie Claire medical needs as we are. The staff at the EMU has been equally as great and Charlie Claire has been her normal, chatty, funny self!
Thank you all so much for the emails, texts, phone calls, etc. We may not get to respond to all of them but we get them and we love them.
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