Video EEG

The past couple of weeks Charlie Claire has been doing something a little odd with her eyes. We've been keeping an eye on things and talked to the neuro's office and decided to move up CB's EEG to this Friday at MCV.  The neuro told us at our last appointment that it would be unlikely for C to have a seizure that involved her eyes since that area of her brain has been removed (only on the left side but C has never had a seizure that started on the right side of her brain, always started on the left).  We of course are not Dr's and don't want to try and figure out what is going on so here we are...having a 4 hour video EEG on Friday morning. This way when she does the eye thing the neuro can confirm what is happening on the EEG. CC has been doing this thing about 6-8 times a day. 

We are trying to remain positive and hopeful that what is going on is not seizure activity but it's hard not to let our minds wander to that place. If they are in fact seizures we hope that they will be able to be controlled with medication - hasn't been our luck in the past but we will have to give it a go.

We are not sure when Dr. Morton will be able to read the EEG so it's hard to say if we will get the results on Friday or if we will have to wait until sometime next week.

This morning Miss Wendy came and C is still doing really well with her PT.  Miss Wendy was able to witness Charlie Claire Bear doing her eye thing , it happened while working on some vision stuff.  When she did it she still continued to track objects. We aren't sure exactly what that means in terms of whether or not it is a seizure but C clearly isn't "out of it" when it's happening. We have a few new things to work on this week and we will be seeing Miss Wendy on Tuesday next week.

We are extremely thankful that Dr. Morton and his staff are able to see us so soon. We are beyond anxious for Friday....