MCV

When you go to ODU it doesn't take long for you to learn that VCU is not your friend.  In case you didn't know - Rams and Monarchs don't get along! This was a hurdle for us when we were first told about MCV which is part of VCU! :) Well...it looks like we might be crossing over to the dark side! We were extremely pleased with our visit today!!

We met with the neurologist (who is an epilepsy specialist), a women doing her fellowship under the neurologist and the surgeon.  They all had a lot of good things to say about Charlie Claire, were very optimistic about her and had a very aggressive game plan.  We felt really comfortable with this team and their concern about C, her well being and doing everything as soon as possible so she has the best outcome possible in the long run.

Our hopes are to get Charlie to 6 months before operating which is 8 weeks from now. If we need to do it sooner we could but it would be best for us to make it the 8 weeks.  We are taking Charlie for an EEG on Monday morning to try and determine if the steroids are working.  If they appear to be she will stay on the steroids a little while longer, if they aren't working we will start the weaning process. If they do not appear to be working there is one other medication we can try -- they are basically just trying to keep things as calm as possible in her little brain until we can get to surgery. 

While Jason, C, Grammy TC and I were taking care of all that today Jackson again enjoyed his day! Toni Ann hung out with him bright and early this morning, Aunt T picked him and took him to the nail salon to visit Aunt Anna. Word on the street is that Jax is quite the ladies man and was eating up all the attention in the salon! He also got to visit with Nicole, Caitlin and Kyle - good thing he got some man time in there!

Also, our photographer, Jessie Smith, continues to amaze me with the awesome photos she takes of Jackson and Charlie! C was having a rough day and you would never know it by the looks of these pictures! Check out how stinkin' cute our babies are!